So where are we a year later...here.
You can see hair is growing back on the top. Hair on the sides and back are taking their sweet old time. I spotted some fuzz on the side today so that is promising. You can still see circular spots a clear sign of the alopecia. But of course all of this new hair can fall out again and we start the cycle all over. The unknown is what gets you.
I stopped using the cream we were using. I wasn't seeing any reaction like it was supposed to cause so I figured what's the point? Her body clearly got used to it. Even without the cream, growth is happening. That's a good thing.
Kaylie knows her hair is short but she doesn't know that it's not supposed to be like that. She is not self conscious of it at all. I have told her she has something called alopecia where her hair doesn't grow but she doesn't quite "get it." She has never asked me why other people have long hair and she doesn't. It's funny b/c she plays with my hair from time to time pulling it back into a ponytail and messing it up but never asks for her hair to be put up. I actually have not put it up in pig tails since January 12th of last year. Kids in her class have never asked about it. I do see older kids--maybe age 7 and up looking at her trying to figure out just what was going on. No one has ever asked me about it either. Kind of strange I think. I don't know if they are just avoiding it or what but then again I probably would never go up to someone and ask either.
Oh and you know what? Her hair actually gets messed up now. I actually have to do her hair. I had many months of not having to do anything to her hair. It feels good but at the same time, man having no hair was so easy!
How I'm handling it: I'm trying to be strong about it. I just tell her she is beautiful every day because she is! I need to build up her self confidence as much as I can. When she asks, I will tell her. I am hoping all the hair grows back before then. :)